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chalmers206

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Tuesday, January 22nd 2008, 9:28pm

Is it true you lose NHS funding if you go private first



hi,


I was on another site browsing and i came across a few ladies talking about nhs funded ivf and private.

One of them said that if you pay to go private before you get your nhs turn then you loose it is this true?.
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Tuesday, January 22nd 2008, 9:33pm

Hi Kat

Yes, sadly it can be true - depends (as it all does) on your local PCTs funding guidelines.

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Tuesday, January 22nd 2008, 9:33pm

Hiya Chalmers,

In some cases it does - you proberbly best checking with your PCTor Dr's.

Do you know if any of the Fz'ers is under same PCT as you, maybe they will allready have info .x x
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Tuesday, January 22nd 2008, 9:34pm

I dont think so My friend went private but I;m sure she was on the NHS waitng list too...but after her second IVF she got a BFP and went on to have 2 more natural BFP so she didint need the NHS one in the end, she said at the time before she went private that the waiting list for the NHS was up to 4 years but i 90% sure she wa still on the NHS waiting list even though she went private

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chalmers206

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Tuesday, January 22nd 2008, 9:36pm

hi all,

thanks for the replies. I will ask the pct that if i get a response from them.
Just wondered as i know a lot of people on here seem to have went private before getting their nhs turn.

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Tuesday, January 22nd 2008, 9:38pm

The PCT's policy where I am is very specific - it says you can have 3 privately funded cycles (or NHS funded ones elsewhere) and then still get one turn on the NHS when you get to the top of the list but you have to be 30-35 - and your NHS 'turn' evaporates if you have a successful pregnancy on any private cycles (or if either partner has children).

Eeyore published a thread of all the PCT's phone numbers where you can ring and check if you are not sure.

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Tuesday, January 22nd 2008, 9:38pm

I think because hun the waiting list are so long for the NHS xx

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chalmers206

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Tuesday, January 22nd 2008, 9:41pm

Quoted

Originally posted by mousie111
The PCT's policy where I am is very specific - it says you can have 3 privately funded cycles (or NHS funded ones elsewhere) and then still get one turn on the NHS when you get to the top of the list but you have to be 30-35 - and your NHS 'turn' evaporates if you have a successful pregnancy on any private cycles (or if either partner has children).

Eeyore published a thread of all the PCT's phone numbers where you can ring and check if you are not sure.



hi thanks.

i am waiting to see if they reply i have asked about funding as dh already has children. When i get a reply i will phone and ask.

thanks
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Tuesday, January 22nd 2008, 9:43pm

in my pct when we looked into it, you could have up to three "other" ivf cycles, before your private one, and it was based on chances of success I think?

I do think, the hope would be, your nhs chance would come up before you got the chance to have three private or you got pg first. do check with your pct, or contact the referring clinic (the place you would have ivf) as they will know your pct details if it isn't one and the same (eg we were in kent but the clinic was guys- and guys had different rules from every pct the covered!)
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chalmers206

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Tuesday, January 22nd 2008, 9:45pm

hi vegemite,

if we are lucky enough to get funding, we would probably have used our nhs goes before we have even saved up enough to go private. :snigger:
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Wednesday, January 23rd 2008, 8:54am

For our PCT you are entitled to 3 goes, but any private goes you have whilst waiting count too. So if you have one private go, you only get 2 nhs etc.. and if you are successful privately, then you don't get any. And if you have any children of either yours or your partners living with you, then you don't get any. I think this is fairly common. Its a way of rationing a finite amount of resources. IMO childless couples (ie: those that have no children living with them) should be entitled to at least one free go regardless of how many private attempts they have had. I also think if they made a concerted effort to reduce waiting times, it would help because couples would be treated younger and therefore have a better chance of success first time round, reducing the need for repeated cycles.

Gosh I've gone on a bit there!





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Wednesday, January 23rd 2008, 9:08am

My PCT sounds similar to other ladies.

They offer three free goes but for every private you have...that's one free go gone.....

So for me....I went on the waiting list January 06....I had one private last Autumn... this current go is free (wahey!).... and if unsuccessful (though it won't be !!!)...we'd probably do another private this year and so that would rule us out of anymore NHS goes :sadface:

If you're not successful after three goes....the NHS view your chances as minimal.

Personally I think we're very lucky as I know alot only have one chance and some none at all.

I do think you'll struggle given your DH has children.

Hope this helps

xxxxxx


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Wednesday, January 23rd 2008, 9:19am

what district do you fall under Kat? this is definitely true in the Lothians....


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Wednesday, January 23rd 2008, 9:33am

I dont know if this helps Kat

We had two self funded cycles prior to our NHS attempt, as up to then NHS funding was not available in Wales. When this finally became available we were at the top of the list and were told that we could have one free go , We were told that if we had had three or more failed attempts private we would not have been eligbe! All I can say is its a good job we didnt have the funds avaialble for a third attempt as this would have scuppered our NHS chance, but I know each area differs so you are best checking

All the very best

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Wednesday, January 23rd 2008, 9:39am

i was told a maximum 2 cycles before not being allowed your nhs go

i personally think its a joke, why the hell can't you have as many goes as you want if your paying!
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Wednesday, January 23rd 2008, 9:44am

i know Kara - it is crazy stuff!! in my PCT you get 3 goes on NHS (though there is a 3 year waiting list and if you have unexplained infertility you have to have been trying for 3 years before you even get on the waiting list). I have a very clear letter telling me that if you pay for a go this is knocked off your NHS allowance.
makes me want to screaaaaaaammmmmmmmmm !!!
oh, adn we don't get a 20 week scan up here either.....


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17

Wednesday, January 23rd 2008, 10:40am

I was only allowed 1 cycle on the NHS, but if we went private before our NHS go we lost the funding, luckily for us we only had to wait about 3 months for our NHS appt.



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18

Wednesday, January 23rd 2008, 11:29am

No i went private and wld have been entitled to NHS - we decided not to go for NHS in end as wanted to adopt

I was told that I wld be taken off the list if I got peggies and went to full term or adopted


chalmers206

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Wednesday, January 23rd 2008, 11:49am

Quoted

Originally posted by JENSQUI
what district do you fall under Kat? this is definitely true in the Lothians....



hi jensqui,

I live in north lanarkshire, still waiting on a response from the pct is there any way i could find out quicker?
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chalmers206

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Wednesday, January 23rd 2008, 11:51am

Quoted

Originally posted by Duffymoon
My PCT sounds similar to other ladies.

They offer three free goes but for every private you have...that's one free go gone.....

So for me....I went on the waiting list January 06....I had one private last Autumn... this current go is free (wahey!).... and if unsuccessful (though it won't be !!!)...we'd probably do another private this year and so that would rule us out of anymore NHS goes :sadface:

If you're not successful after three goes....the NHS view your chances as minimal.

Personally I think we're very lucky as I know alot only have one chance and some none at all.

I do think you'll struggle given your DH has children.

Hope this helps

xxxxxx




hi duffy,

thanks for the reply, i know i will probably struggle as dh has children but they dont live with us. Anyway its worth a try. will see what happens.

kat
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Wednesday, January 23rd 2008, 4:52pm

Hi Kat

As i mentioned in a previous post before we're going private as the wait on our nhs was at least 2yrs. Our con from the hospital had put us on the nhs list before we asked for a referral to the private clinic we're using now. We thought that by asking to go private that it would mean been taken off the list but to our surprise our con has informed us that it in no way effects our position on the list plus the con from the clinic we're using now said that they refer all there patients to the nhs hospital as well.

Thats in Northern Ireland so don't know what rules there is in other areas.

Shirls xx
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Wednesday, January 23rd 2008, 5:03pm

my clinic allows a max of 3 embryo transfers whether private or nhs, im sure they also deduct your private cycles from your nhs cycles, ie 2 private cycles and your only allowed 1 nhs.


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chalmers206

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Wednesday, January 23rd 2008, 5:12pm

hi shirls and milner,

thanks for your replies. I will just have to wait and see what they say. hopefully we can even get one free go that would be great.
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Sunday, January 4th 2009, 3:52pm

NHS funding vs private treatment

Hi,

I'm just wondering what are the criteria for NHS funding?

If we have any treatment privately, does it mean, we can't be on a waiting list for the NHS treatment?

Could someone direct where I can read up on it? From what I have been reading so far, it varies and I'm getting consufed....

BTW - I'm in London.

Thanks!
:snowangel:


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Sunday, January 4th 2009, 3:54pm

this varies widely , your best bet is to contact you local pct. you can find the telephone number in the phone book or try online

this way you will have the answer from the horse mouth
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Monday, January 5th 2009, 6:26pm

Hi
There is so much conflicting information about what the NHS will and won't pay for and what your pct will and won't pay for especially as NICE says three cycles but a lot of pcts will only pay for 1 still.

Basically the criteria we had to follow in Bucks was:
Me under 38
My BMI under 30
Neither of us could have had kids before - natural, adopted or fostered.
Neither of us could be smokers
Neither of us could have tried IVF before - private or NHS

I think you'll find the criteria are fairly similar everywhere but I did find talking to my pct very helpful.

Good luck!!

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Wednesday, February 18th 2009, 11:48pm

The rules all suck don't they ladies. If any of you have kids some PCT' won't give you free treatment how unfair is that,my DF has a kid who doesn't live with him but i get punished for that?

For those in Scotland i found this document which tells you criteria for each area on page 29.


http://www.show.scot.nhs.uk/publications/me/eagiss.pdf

Document is old but can't find an updated version,

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This post has been edited 1 times, last edit by "Bride2Be" (Feb 18th 2009, 11:51pm)


chalmers206

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Thursday, February 19th 2009, 4:12pm

hi


I know the rules are ridiculous. My dh has 2 kids as well which are now 20 and 22 and we are not allowed funding cause of that.

its shocking xx
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Thursday, February 19th 2009, 6:53pm

I have been advised that all PCT's have their own set up, however the NICE guidelines are followed by nearly 90% of them. And the guidelines state, if either partner has children living then you are not elegible for NHS also if infertility is due to sterilisation then no go!!!

Hence why we are stuffed!

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30

Thursday, February 19th 2009, 7:09pm

Ok am I getting this right

If I have 3 unccessful tx's however funded, I do not get another cycle?

Or am I picking it up wrong?

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Wednesday, October 20th 2010, 11:43am

paying for private whilst waiting for nhs????

Hi all

Does anyone know if you pay for IVF privately would you lose one of your goes under the NHS?

I have just found out that both my tubes are blocked so IVF is my only option.

I now have to wait 6 weeks for my post lap and dye appt and will then have to have more tests before my referral will go in st Marys and from them theres another 18 weeks wait at least. i thought in the mean time i could go private but dont want to lose my nhs goes.

thanks

Lou

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Wednesday, October 20th 2010, 12:07pm

Hi there,

We did this (but luckily didn't need the NHS attempts). Our PCT was happy that even if we had paid for 100 cycles, we would still get the three NHS cycles. Having said that, each PCT area is different so you would need to ask your GP I would imagine. They should be able to tell you in my detail - I have heard that in some areas this is the case which annoys the hell out of me! Perhaps if it didn't take so long in the first place, people wouldn't have to pay privately!

The only thing that I would say is that it can become very confusing with all the appointments and referrals etc. Also, if you start IVF privately then you will not be able to have certain blood and other tests done whilst in that cycle. If they want to do hormone testing and anything particularly invasive then if you are in the middle of a cycle, these will have to wait (does that make sense?). Depending upon what sort of treatment you undergo, you will be taking hormones etc all the way through your cycle so any blood tests will be inaccurate.

The other thing we noticed that because we were paying privately whilst the NHS referral was ongoing (to the same clinic), the clinic wasn't particularly prompt with dealing with the NHS side of things. I guess they think that if you are paying privately, they can leave the NHS referraly on the backburner.....very unfair but seemed to be the case with us.
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Wednesday, October 20th 2010, 2:33pm

I actually have seen pcts guidelines and a some of them say this

Where a woman has previously privately funded one or two cycles the PCT will still fund two cycles, until a maximum of three cycles has been completed, after which the chance of success decreases substantially.

so basically no matter is one private and two nhs or 2 private and one nhs the total is three so if you had 3 private cant get funding if you had 1 private you get 2 or 1 depending on your pct , I hope you understood what I mean.
Regards

** moderator note - this varies from one PCT to another so you need to check with your own for their guidelines **
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Wednesday, October 20th 2010, 2:35pm

MMM just saw this was an old post and you are already had a baby congrats!!!

**moderator note - the question was asked by a member this morning and merged into the thread we already have on this discussion. It is the OP who has since gone on to have a baby **
TTC#1SINCE2003
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DH39varicocele opp06
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lapdye,ov.drill2oct 09,too many treatments to mention
Shock natural:BFP:My miracle baby Sam Corey lost 17/01/11 4.30
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IVF JULY/AUG 11 immune / severe OHSS but :BFP: [zx076]saw every week ,BORN WITH SPECIAL HEART April 12



This post has been edited 1 times, last edit by "mim" (Oct 20th 2010, 2:36pm)


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35

Wednesday, October 20th 2010, 2:40pm

i called my pct (oldham) who said that if i pay private now as my referral for nhs has not gone in yet i may not get any funding at all.

If i wait for my referral then pay for private this will come off one of my allowed 2 nhs cycles.

im so sick of waiting now, i kmow my tubes are blocked so i just want to get on with ivf.

lou

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Wednesday, October 20th 2010, 4:59pm

LL: It's such a nightmare isn't it. They seems to be lots of ways of catching us all out doesn't there. Seems so unfair. I had a private cycle earlier this year and when that failed we looked into getting NHS funding whilst undergoing another private cycle (which thankfully worked). They still wanted all the various tests and prodding to be carried out, even though I was being referred to the same clinic, the same Consultant. They said that because they have to fill in a NHS Referral Form, they had to cover everything even if there was evidence, albeit privately, of exactly what was wrong with me. I remember they said that I would have FSH, LH etc tests all done again plus other more invasive testing to see if my tubes were blocked etc..... Made me really angry because we already know that this is not the case and in any event, with IVF you don't use your tubes! I said to the NHS Consultant what a waste of NHS money it was and he agreed but said that his hands were tied into the NHS protocol.....soooooooo stupid! RANT OVER!
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37

Wednesday, October 20th 2010, 5:07pm

Hi Lou
I know all PCT's differ but mine say they will not fund tx for any couple who have previously had 2 or more private cycles.

Some ladies have one private go whilst waiting to climb the NHS wiating list

hope this helps :) x

This post has been edited 1 times, last edit by "Sun Flower" (Oct 20th 2010, 5:09pm)


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38

Thursday, October 21st 2010, 2:22pm

Thanks for the replys

Sunflower what PCT are you with? mines oldham, i called them again today and i feel im getting mixed messages. They advised that i should wait for my referral to go in before i pay for a private cycle as if i pay for one before i may not get funding for the other cycles?? they also said today for oldham you are still entitled for 3 cycles but yesterday the lady said it was only 2.

is there somewhere you can get all the info in writing as i dont want to jepodise my chances of ever having nhs funded cycles should a private one not work.

thanks

lou




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