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lulu27

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1

Thursday, August 9th 2007, 11:29am

Seb's Eczema *update 10/9/07*

am really pleased because after 7 months we are finally getting referred to the excema nurse specialist for Sebbie's skin. Every morning his sheets are covered with blood where he scratches at himself. Everytime I take him to the doctors they just prescribe the same treatment e45 and hydrocortisone cream which I have to use every day and the patches just wont clear up, he has had a weeping bit on his head since birth!!!! Shall i ask her to swab these areas that wont clear???
I bath him in dermol and wash his body and head in aqueous cream and it still wont go. Has anybody found anything useful that has worked for them??

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Thursday, August 9th 2007, 9:25pm

We have a dermatology specialist nurse in the area I work and she is bloody brilliant. I'm sure she will sort it for you honey, it sounds horrible. Have you tried the Matalan babygros wth the fold over sleeves, they are better than scratch mits because they don't come off? We also found socks on DDs hands better than scratch mits. Also a spoonful of medised at night may be a good idea. It has an antihistamine in it which may soothe the itch for him and will also help him sleep, speak to the nurse about it. I know ours sometimes prescribes night sedation for babies whose eczema is so bad tey don't sleep.





lulu27

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Thursday, August 9th 2007, 10:04pm

Thanks hun, I have actually got some piriton syrup that they prescribed when the antibiotics they gave made it worse. The thing is it doesnt really bother him, he sleeps for 14 hours solidly, i'm worried that the scratching is more of a habit now, when i'm changing him he will just scratch and pull at his chest, stomach or top of his legs. Have though about using the mitts and have the next ones with the fold over ones on but it's been 27 degrees in their nursery so thought it best not to use them. am really looking forward to hearing from the nurse, I bet she'll know her stuff!!! xxx

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Friday, August 10th 2007, 1:12am

Its great that you are seeing a specialist as in my experience gp's dont have a clue. I would ask about an allergy test to find out if your wee ones allergic to anything including the creams he's using as they roughly have the same ingredients.

Vallergan Syrup was a life saver for me when i was a baby as it cooled me down and knocked me out it also tasted lovely aswell lol, Oilatum is good for baths as its antiseptic.

Also be carefull when using steroids as it thins the skin, and try olive oil for a moisturiser as its natural and has no fatty alcohols in it. And cotton all in ones including the hands and feet (like a babygrow) for bed time will keep your wee one cool and create a barrier between his nails and skin better than gloves/mitts will.

http://www.eczemavoice.com/forum/index.html great site for info on Creams, Allergies and Diet


I realy hope both your wee ones grow out of it asap x


Mummy to a beautiful little lady



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Friday, August 10th 2007, 8:41am

Oh no :( The advice you have been given already is spot on, just to add further though what wash powder do you use? I use persil non bio now, but once I switched to arial and Lollys skin really flared up then. This heat makes it worse unfortunately, especially around the joint creases where they sweat. The babygros are an excellent idea, and if you worry about Seb overheating use a flat cotton sheet rather than a blanket and keep the window open a tiny bit until you go to bed to keep the air in.
xxx








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Friday, August 10th 2007, 10:19am

ok - will give DS#1's experience - see if any of it rings a bell

nasty nasty eczema from around 1 month old

so bad it was weeping and he looked scalded as if he was burnt, particularly on his face
he has a stork mark on the back of his head that always weeps
at 3 months / 4 months he got cracks around the ears that started bleeding
we had to go to hospital because he was turning blue - turns out that was due to a hole in his heart - unrelated. but the cracks around the ears was due to a staph infection in his blood - comes from the skin and enters the eczema wounds and then infects the blood. so he was in for a week on an IV with anti-biotics.

we did give him hydrocortisone cream. 0.5% on his face, 1% on his body.

aqueous cream to rub in his body, along with petroleum jelly, particularly at night time

only use baby oil or aqueous cream at bath time. wipe bum with johnson baby wipes only.

sleeping in sleep suits (& socks over hands when it was bad), wears long trousers & shirts to stop (or try to!) scratching!

very careful on food - he is allergic (through trial & error) to pumpkin, milk & couscous & any foods containing these items as ingredients. drinks only soya formula for "milk".

avoid getting hot & sweaty - keep in cool environment as much as possible.

at around 1 year the majority with a cold two week spell in the UK cleared but he still gets bad flare ups on occasions.

any questions - just ask! brain sleep deprived....

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Friday, August 10th 2007, 10:24am

Hi Lulu

I was just about to put a thread on for this. My HV has just been and Max has some excema too mainly on his head - it was just one small patch but it has got worse (i thought it was cradle cap duhhhhh) - anyway she has written me a prescription for something so am away to pick it up now I will let you know how we get on with it - not sure what its called. I did ask about E45 but she said not to use that for excema??? Its mad how they all give different advice. I am pretty lucky in that its not bothering him as such and he is not scratching it but its pretty yucky to look at. Hope Seb's clears up soon.

H xx


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1 x FET resulting in my gorgeous son born 2007

lulu27

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Friday, August 10th 2007, 3:03pm

Thanks guys for all your advice, Sunshine it is his stork mark that weeps, crusts over goes away a bit then comes backwith avengeance!!! Milner thats all fab advice and I will def check out that link, I hate using the steroid cream as know how nasty it can be for thinning skin, I use fairy washing powder and comfort pure fabric conditioner. Glitzy let me know what the cream is you ar getting. Can you believe that people in the street keep making comments like, What as you mum been doing to you!!!! Makes me feel awful like they think I dont look after him!!! xxxx

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Friday, August 10th 2007, 3:37pm

Hi Lulu

You may have already tried this but one of my ds's had it terribly as a baby and as soon as I took him off all food containing lactose or anything with a cows milk base (whey etc) it cleared up completely - it was a pain as I had to look at the ingredients in everything but worth it. I slowly started to re-introduce it when he was about 18 months and he was fine and has never had a problem since.

Good luck

x

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twin boys born '93, dd born '98 [zx076]


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Friday, August 10th 2007, 4:19pm

Lulu its called CETRABEN - just picked it up today so will let you know how we go with it. Max's is not as bad as Seb's sounds though so not sure if this cream would be effective for Seb but will let you know how Max goes with it. xxx


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Saturday, August 11th 2007, 6:29am

lulu - dont be scared of using steroid creams though

thin applications, twice a day for up to a week at a time are fine & they truly do help

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Saturday, August 11th 2007, 12:04pm

Hi HUn
your poor ds, his ezcema sounds awful, it must be so uncomfortable for him,
Evie-mae started with ezcema at 1 month old also, mainly on face, docs perscribed an EMOLLIENT CREAM CALLED EPADERM, i would be lost without it, i find the heat makes e-m ezcema flare up, so i try to keep her cool,
this cream is great, you can also use it allover after a bath

hope ds is feeling better soon

sharon and evie-mae x xx
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DH had Tese tx Jan 06
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Saturday, August 11th 2007, 6:28pm

Just to say the cetraben has worked on max overnight (his was never too bad though ) xxx


5 x ICSI b.f.n
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This post has been edited 1 times, last edit by "Glitzy" (Aug 11th 2007, 6:29pm)


lulu27

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Saturday, August 11th 2007, 6:34pm

That's Great H, i'll have to ask about it, sunshine i'm glad that it's ok to use the steroid cream reg, I was worried about using it everyday but yes it does help xxx Thanks Sharon will also mention the epiderm, I really think he'll grow out of it the heat does seem to worsen it, poor little lamb the way I see it is it could be worse and it doesn't seem to bother him xxx

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Saturday, August 11th 2007, 7:35pm

This weather does them no favours, too much humidity in the air :(

Keeping them cool is the main thing, although you may find that as soon as winter strikes they get another flare up when its time to turn the central heating on :(

xxx








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Monday, August 13th 2007, 7:33pm

Took Seb to dr's today and i'm to continue with the e45 and steroid cream but they eventually agreed with me that it looks infected so he is on Clarithromycin 2.5 mls x 2 per day. I'm hoping this is gonna suit him as when he was on fluclox he got a reaction to it. Tonight he just would not have any of his last bottle which is very unlike him he was very tired!! No temp though so gave up trying to give it and put him to bed, hope he's gonna be ok, I doubt the antibiotics would have that sort of effect on him that quickly so guess i'll be up early in the morning!!!

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Tuesday, August 14th 2007, 1:52am

lulu - dont worry about bedtime bottle - if he's hungry or thirsty he will take it, if he isnt he wont. at 7 months he is much better a judge of his own needs.

tbh the antibiotics are probably giving him a little tummy ache (I know they do for me!) which is why he might be off his food for a few days

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Wednesday, September 5th 2007, 11:36am

100 % cotton fitted sheets

I'm thinking that maybe the Jersey sheets are aggravating seb's skin as his face is bad where he lies on his side and is always worse in the morning could I be right???

Does anybody know where you can but 100 % cotton FITTED cot bed sheets? Had a look on mothercare but they are only jersey ones that come fitted.

Thanks Lou xxx

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Wednesday, September 5th 2007, 11:51am

RE: 100 % cotton fitted sheets

Just having a search.

John Lewis -

100% cotton - All different colours & fitted

http://www.johnlewis.com/+Baby/Sleeping/…38/Product.aspx

http://www.johnlewis.com/+Baby/Sleeping/…35/Product.aspx


xx
PCOS
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Wednesday, September 5th 2007, 11:54am

RE: 100 % cotton fitted sheets

PCOS
TTC 7 Yrs
2nd IVF - Blastocyst Embies
unbelievable BFP & TWINS!!
Now have beautiful twin girls




My family is now finally complete.

Torisen

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Wednesday, September 5th 2007, 11:57am

http://www.greenbaby.co.uk/pl_BEDTIME_BEDDING.htm

Organic fitted sheets in various weaves.
The flanellette is very soft and cosy



You could try the sheepskins for him to sleep on!
http://www.greenbaby.co.uk/pl_BEDTIME_SHEEPSKINS.htm
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(

This post has been edited 1 times, last edit by "Torisen" (Sep 5th 2007, 12:06pm)


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Wednesday, September 5th 2007, 12:39pm

thanks guys, Torisen i have flannelette and jesy and I think that because they are snuggly they make it worse, I think i need 100 % as it's cooler. the sheepskins are lovely but i think they'll aggravate it too!!!

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Wednesday, September 5th 2007, 12:48pm

are my ideas any good Lulu?
PCOS
TTC 7 Yrs
2nd IVF - Blastocyst Embies
unbelievable BFP & TWINS!!
Now have beautiful twin girls




My family is now finally complete.

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Wednesday, September 5th 2007, 12:56pm

oops sorry hun just dealing with a very grumpy baby as his skin is bad again!!! Only on his face maybe he's teething!!! Yes they look right as long as they re not flannelette or jersey which i'm sure it would say if they are, your a star, the ones on the website which Tori reccomended also look good!!! I did a search and couldn't find anything!!! Thanks girls really appreciate your time xxx

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Wednesday, September 5th 2007, 1:56pm

Lulu, they do the crisp cotton sheet too that is 100% cotton
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


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Wednesday, September 5th 2007, 2:06pm

Yeah saw those better price than John Lewis so may get them from there!!! Thanks everso much. Honestly am at the end of my thether at the mo, would try anything to make him a happier baby!!! Am thinkig he's grumpy cos he's bored of me and wants Daddy (dont we all) ho hum never mind xxx

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Wednesday, September 5th 2007, 2:08pm

Lulu, make sure that it is an unbleached organic sheet without chemicals and pesticides :(
I am so sorry that you are struggeling with his skin. It can't be fun :(
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


lulu27

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Wednesday, September 5th 2007, 2:16pm

The ones you suggested should be chemical free etc shouldn't they???

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Wednesday, September 5th 2007, 2:21pm

lulu - I so sympathise

DS's skin was so bad it used to look like he was scalded! :8o: :(

to be honest, cotton didnt really help, but it is always worth a try. that and changing the sheets every day, and using non-bio washing powder, no softener, and a tumble dryer.

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Wednesday, September 5th 2007, 2:22pm

yes, but not John Lewis.
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


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Wednesday, September 5th 2007, 2:29pm

Cool was going for the green baby ones anyway, thanks for your suggestions tho Lisa!!! Didn't realise not to use Fabric softner what about a tumle drier sheet??? Have bought this cream called osas off the inernet with Aloe vera so going to try that especially for his face, because I constantly use creams with steroids in on his face, (dr reccomends this!!) he only has to catch himself and he bleeds am worried that he'll get scarring!!! What annoys me is strangers coming up to him saying oh look your sister has been beating you up!!!! Or even worse your Mummy!!!!

Right so Cotton Sheets, No fabric softner, have been leaving him out of sleeping bag as room temp is always about 23, apart from taping his arms down by his sides I think i'm doing all I can!!! Thanks guys I dont feel so alone with all you giving me tips and advice, roll on November then at least I'll get support from dh!! xxxxx

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Wednesday, September 5th 2007, 2:30pm

oh another dumb question Torisen which ones are the cotbed size???

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Wednesday, September 5th 2007, 2:43pm

lulu - I know - I got comments like that the whole time "oh my - what has your mummy done to you?" :8o: ;(

do you put socks over his hands at night time?

erm, another suggestion - try changing his formula if he is on formula to soy milk - this really helped DS#1 even though he was bf for the first 6-7 months. once he got off breastmilk and stayed away from cows milk we saw a big improvement in his colic

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Wednesday, September 5th 2007, 2:47pm

no to the tumble dryer sheet as well - basically you have to minimise any chemicals getting in contact with the sheets. use a dryer to soften the sheets, but dont make them smell with any additives

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Wednesday, September 5th 2007, 3:00pm

You can use a tablespoon of white vinegar instead of fabric softener. It softens the clothes beautifully, is an antibacterial and I promise that it doesn't leave them smelling of fish and chips.


Sunshine's right about the tumble dryer sheets, they can really aggrivate sensitive skin. Stick to something like Surcare non bio washing powder (even Fairy non bio is smelly) and no fabric softener at all.

My DD2 would rip chunks out of her leg when she was small. The steroids and topical creams were helpful but the cure in our case was switching washing powders and fabric softeners.





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Wednesday, September 5th 2007, 3:05pm

Ah brilliant will not use fabric softner or sheets, i'm such a dumbass maybe it's all my fault!!! Am going to try socks on hands tonight!!! When i'm next in tesco's i'll get the Surcare and some white Vinegar. Thanks everyone xxxx

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Wednesday, September 5th 2007, 3:07pm

They currently have sma gold, is it ok to just change milks?? What is a good one then?? Sorry so many questions!!!

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Wednesday, September 5th 2007, 3:12pm

You're not a dumbass lulu :D .... My Dad has very irritable skin and a bad chest since he had carbon monoxide poisoning several years ago (!). So, I was brought up with washing that smelled of nothing and stiff towels as anything else would make him itch and wheeze. So when I left home, using lovely smelly stuff in the washing machine was liberating and I loved to snuggle my baby up in those fluffy frangranced babygros and bedding. It was only when she literally has skin under her fingernails and couldn't extend her leg without it bleeding down her calf that I saw the light and went back to non-frangranced stuff again. After months of pain she healed in a matter of days.

Sunshine's son was a more complex case and she had to make more changes but this is a good starting point.


A learning curve... that's Motherhood for you!! ;)





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Wednesday, September 5th 2007, 4:51pm

Lulu, I have no idea about the size but you can measure your bed and call them!

I thought that Aptamil is one of the formulas that most people reccomend.
They are pretty old now so I don't think that it should be any big problems trying a new formula now...
You could do as Sunshine and try soya formula (don't know any brands of this)

Start with mixing half half a few times. (also, got no experience with this so other people might have better ideas)
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


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Wednesday, September 5th 2007, 4:54pm

spud used to have soya milk, infasoy i think it was called but they dont recommend you give babies soya milk any more...but i dont know why ?(



I'm running down the road like loose electricity, while the band in my head plays a strip tease!



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Wednesday, September 5th 2007, 5:18pm

Thanks my lovelies, think i'm gonna try the sheets and Washing powder etc first, then see how I go, cos if I change everything all at once I wont know what is ctually helping it, if that makes sense! Just borrowed mf riends baby walker I dont really like them but because his hands are busy i've been able to put him in it in just a nappy and he's not scratching!!

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Wednesday, September 5th 2007, 7:00pm

We used the tippytoes door bouncer! It was ace!!!
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


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Wednesday, September 5th 2007, 8:40pm

Aptamil is cows milk not soy. Tescos sell a soy formula that I think is made by SMA.





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Wednesday, September 5th 2007, 10:25pm

Mrs J I ment aptamil if she wanted to stick with cows or otherwise try some soy formula.
Sorry for being unclear :)

Problem is if you are allergic to milk proteins then you often get a cross-reaction and also react to soy
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


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Thursday, September 6th 2007, 2:34am

yup - you have to be careful - I wouldnt mix half & half if you are going to try soy formula - just make a straight and instant switch

another option is to try hypoallergenic cow formula - NAN HA? I think it is called over here.

problem for us was DS is *violently* allergic to milk, even the hypoallergenic contained enough to make him vomit & come up in hives. the 'normal' formula made him swell up like a balloon, so we really didnt have much choice.

i was sooo worried about soy (because of fears of artificial hormones), but almost all the babies here in asia drink soy either as formula or as toddler milk.

DS is doing fine & well on soy formula & his dingle is perfectly normal ;) , but it may not be the answer for everyone.

lulu - you are doing the right thing by waiting and doing one step at a time. if simply changing washing powders etc works, then that is much simpler & easier!

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Monday, September 10th 2007, 11:44am

Seb's excema Update

Well I ust cant believe it, and I wish i'd taken before and after photos!! For the last 5 days I have been washing all of his clothes and sheets etc in Surcare and with no fabric conditioner, I also purchased this cream of the internet that has turned out to be a miracle!!! Seb has gone from a grumpy baby who had blistered angry red skin all over his back and chest and face, to a happy settled baby with not a mark on his face and the patches on his back and chest have gone from bright red angry to faded pink areas!!! Am in total shock it's amazing, probably helped by the washing powder and no fabric conditioner and changing his sheet every night. Just want to say a huge big thanks to everyone that gave me advice over the last few weeks you know who you are xxxxxxxx

Torisen

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Reg: Jan 1st 2006

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Monday, September 10th 2007, 11:46am

I am so pleased for you!!!!!!!!!
so soooooo pleased!!!!!!!!!!!
ICSI Jan 2006 - BFP
MC one twin at 6 weeks
DS born in Oct 2006
BF DS 10 months 3 weeks and 5 days
FET 11/07, ICSI 12/07 (ABANDONED), ICSI 2/08, IUI 5/08 - BFN
Clomid IUI 7/08 BFP MC a twin... again :(


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Monday, September 10th 2007, 11:48am

awww, so glad it is clearing up!!!

:hugs: k xxx



I'm running down the road like loose electricity, while the band in my head plays a strip tease!



lulu27

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Monday, September 10th 2007, 11:50am

Honestly I just want to do cartwheels!!!! Am amazed that something so simple turned out to help!!!! And after only 5 days!!! He was always gorgeous but now without scratches and sore bleeding skin he is just absolutely scrumptious and very happy!!!! I love you all xxxxxx

Missy

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Monday, September 10th 2007, 11:51am

Really glad its cleared up hun :)

Long may the clear skin continue happydance








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