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  • "claire200" started this thread

Posts: 66

Reg: Feb 5th 2007

Location: Scotland

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1

Thursday, February 15th 2007, 8:21am

on the bowel?

AT my last Lap in Nov 06 I was told I have Endo on my rectum and Pouch of Douglas. My Gynae said he wasnt keen on trying to remove it because there could be lots of complications and it should really be done by a surgeon and not a gynae.

Since then I feel like its getting worse, everytime I eat something I feel lots of pressure down there and feel like I need to go.

Has anyone else felt like this? Anyone had endo here and had it removed?
Claire xx

Married Dec 2005
Me 25 dH 26
TTC since May 2005
Ruptured ovarian cyst May 2005
Endometriosis diagnosed, right ovary and tube removed Nov 2005
Lap and Dye, more endo and cysts removed Nov 2006
Discovered H has low sperm count Nov 2006

Rufus

Star

Posts: 1,259

Reg: Oct 3rd 2005

Location: N Ireland

Children: One son, aged 8, daughter 1

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2

Thursday, February 15th 2007, 8:54am

HI, I haven't had it there. But on my left side and lower back I've had treatment on two occasions. The first time it was by a drug for three months (it was 1999, so I can't remember the name!) and the second time was April 04 by lazor. Hope you able to get something sorted. Know how sore it is when rearing ugly head, Love lEsa xxx
Keep smiling :happy:

  • "claire200" started this thread

Posts: 66

Reg: Feb 5th 2007

Location: Scotland

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3

Thursday, February 15th 2007, 12:50pm

Thanks for the reply Rufus. Ive had it removed twice by laser (Nov 05 and Nov 06) from other areas. In 05 they also removed my right ovary and tube because of the Endo damage.
Its because of where this patch is my gynae wont touch it
Claire xx

Married Dec 2005
Me 25 dH 26
TTC since May 2005
Ruptured ovarian cyst May 2005
Endometriosis diagnosed, right ovary and tube removed Nov 2005
Lap and Dye, more endo and cysts removed Nov 2006
Discovered H has low sperm count Nov 2006

Posts: 1,805

Reg: Oct 7th 2005

Location: x

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4

Thursday, February 15th 2007, 1:12pm

yup - good on your gynae

go for surgery with a surgeon

I had it on my bladder, bowel, uterus, and ovaries, and tubes

it was removed duringmy em c-section (although they didnt tell me until afterwards?!)

I can now go for more than 2 hours without needing a pee

or needing to do a poo just before AF
bowel movements are always painful - or rather were - they arent any more - no nasty cramps and really hurting

my life is so much better

gayle

Newbie

Posts: 5

Reg: Mar 13th 2007

Location: Leicester

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5

Tuesday, March 13th 2007, 12:25pm

RE: on the bowel?

Hi

I really feel for you. I also have endo and its not nice. At my last surgery I was told that I have some in the bowel and I had adhesions there as well. fortunately they were able to diathermy quite a bit off and release some if not all of the adhesions. Bowel wise I'm much better than I was (dare I say almost back to normal).

My advice, keep pushing for a referral to the surgical team or gyni team, my surgery was done in the gyni dept but they didn't actually go in expecting to find the endo/adhesions on the bowel so that might be why they're suggesting the surgical team.

When you get the referral, prepare for the appt and note down all and any questions you can think of (even if they sound silly - if they worry you they DEFINATELY aren't silly!).

Good luck and make a nuisance of yourself - it seems to be the only way these days!

Take care
g
x
Gayle

kar1

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  • "kar1" is no longer a member of FZ

Posts: 12,830

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6

Tuesday, March 13th 2007, 12:31pm

The reason they don't like to removed it from the bowel and the pouch of douglas is incase they damaged the bowel and then it turn into a big problem, my tube was clipped and left as its adhered to my colon.

As Gayle says, write down all questions however silly you think they are, you should hear some of the things i have asked lol

god luck
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

  • "claire200" started this thread

Posts: 66

Reg: Feb 5th 2007

Location: Scotland

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7

Thursday, March 15th 2007, 8:06am

Thanks ladies. Im actually pretty terrifeied of another big surgery, plus my gynae said this one would be even more invasive and longer to recover from the op I had in Nov '05 when he removed my ovary and tube etc.
He recomended leaving it just now until we have had a family.
Claire xx

Married Dec 2005
Me 25 dH 26
TTC since May 2005
Ruptured ovarian cyst May 2005
Endometriosis diagnosed, right ovary and tube removed Nov 2005
Lap and Dye, more endo and cysts removed Nov 2006
Discovered H has low sperm count Nov 2006

Posts: 176

Reg: Mar 4th 2007

Location: Surrey

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8

Thursday, March 15th 2007, 10:35am

Hey Claire

I also have Endo on the P of D, which is delightfully sticking my bowel and my womb together - yay :tear:

I had a full laparotomy last Sep to try and deal with this and all the cysts, adhesions etc, unfortunately it didn't work, or they didn't have enough time or something as apprently I'm still all stuck, and the cysts are back - hence having a 2nd opinion, cos no-one seems to really know mmmmmm.

But what i would say is that i have been told that having Endo there makes IVF much more difficult as they potentially have to go thru the bowel to collects eggs, which could perforate it and worse still get Endo IN your bowel :thumbdown:- a very bad place to have it. Usually when you have EC, you're tipped back and all your internal organs fall out of the way, but if they're stuck they can't. Now i am seriously hoping that this isn't true as i really don't want another big op either, but it's worth asking the question if you're thinking of IVF.

Have you been on Zoladex? Can be very good for putting Endo to sleep. Doesn't suit everyone, but if you're having Endo surgery it is often recommended to soften up the Endo before they go in, makes it easier to remove. Of course you can't get P/G on it tho.

Hope I haven't depressed you too much, but i thought i'd better mention it. - and anyway maybe (hopefully!) someone can tell me I'm wrong about the IVF stuff.

:xxx:

Thea 33, DH 35
married 1998
ttc 5 yrs
DS conceived naturally born by C-Section Feb 2001
Endo diagnosed Oct 2005
3 laparoscopies, 1 laparotomy, 6 mths Zoladex
Apr 2007 - waiting for MRI to determine Endo activity, then more zoladex.
Should be able to start IVF in Autumn 2007 - at last!

  • "claire200" started this thread

Posts: 66

Reg: Feb 5th 2007

Location: Scotland

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9

Thursday, March 15th 2007, 12:54pm

Thanks Thea!
I havent had Zoladex because we are still TTC. My last lap was just in November so was hoping we would concieve before needing any othe rtreatment, hasnt happened so far though!
Claire xx

Married Dec 2005
Me 25 dH 26
TTC since May 2005
Ruptured ovarian cyst May 2005
Endometriosis diagnosed, right ovary and tube removed Nov 2005
Lap and Dye, more endo and cysts removed Nov 2006
Discovered H has low sperm count Nov 2006

Posts: 176

Reg: Mar 4th 2007

Location: Surrey

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10

Thursday, March 15th 2007, 4:16pm

Sending you lots of babydust Claire

If all else fails and they say you need another op, ask about zoladex - i'm probably boring you to tears about this but a lot of the big Endo specialists say that it's the best way of ensuring success with the op, esp for fertility purposes.

I'll shut up now :zipit: before you reach thru the pc and strangle me with your bare hands :laugh:.

We haven't had any luck since the op either, but then as both ovaries have cysts again, and my tubes are an unknown quantity, it's fairly unlikely. Despite that it doesn't stop me having a nervous breakdown every month when AF is due - i think i'm probably kidding myself but can't seem to help it.

I'm pinning all my hopes on the new cons :pray:. DH keeps warning me not to get my hopes up, to be realistic, and he's got a point. But the only thing that keeps you going on this ttc ride is hope - I'm not ready to give that up yet.

:xxx:

Thea 33, DH 35
married 1998
ttc 5 yrs
DS conceived naturally born by C-Section Feb 2001
Endo diagnosed Oct 2005
3 laparoscopies, 1 laparotomy, 6 mths Zoladex
Apr 2007 - waiting for MRI to determine Endo activity, then more zoladex.
Should be able to start IVF in Autumn 2007 - at last!

  • "claire200" started this thread

Posts: 66

Reg: Feb 5th 2007

Location: Scotland

  • Send private message

11

Thursday, March 15th 2007, 5:24pm

I know how you feel Thea. Its unlikely we will concieve naturally with both our problems but I still get my hopes up every month and they are dashed all over again!

Good luck with you new consultant!!
Claire xx

Married Dec 2005
Me 25 dH 26
TTC since May 2005
Ruptured ovarian cyst May 2005
Endometriosis diagnosed, right ovary and tube removed Nov 2005
Lap and Dye, more endo and cysts removed Nov 2006
Discovered H has low sperm count Nov 2006




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